Sunday, February 15, 2015

Thirteen years and counting...

Someone asked me recently how long Billy has had Alzheimer's Disease.  It's always hard to answer that because gaining that diagnosis seems to be a process.  I first noticed that something was wrong in 2001 after Shelley had graduated from high school. Billy was 45.  We were having major issues with our son, Andrew, and we had many discussions about those issues.  We would spend hours arriving at a decision on the consequences we would put in place for Andrew, and the next day when I would mention that decision to Billy he seemed very surprised and sometimes was angry that I had not consulted him first.  Billy was diagnosed with adult ADHD and given meds for that.  He probably did have ADHD, but the meds did not improve his memory. After that the doctors decided he was depressed, and he probably was.  He knew something was wrong but no one could tell him what it was.  From there his diagnosis became Mild Cognitive Impairment (MCI), and I assure you that it never seemed mild to me.  When he was 51, he was diagnosed with Alzheimer's Disease.  It was not like a blood test finally showed that he had it, or he finally had all the criteria on a list.  I remember sitting in the neurologist's office and talking to him about Billy's struggles at work.  I looked at him and said, "What do you think is going on with him?"  He responded that he felt that Billy had Alzheimer's Disease.  

Here we are thirteen years later, and we have no doubt about that diagnosis of Early (Young) Onset Alzheimer's Disease. For many years Billy looked like any of his peers, and in social situations he seemed completely normal.  But as his brain became more and more ravaged with the plaques and tangles, he could no longer function normally, and now the physical repercussions of the disease are astounding.  When Billy was diagnosed he weighed about 250 pounds - a bit too heavy for his 6'1" frame.  On February 4th of this year, he weighed 160 pounds - way too little for his ravaged frame. Billy's fingers were alway chubby, and his wedding ring was size 12.  Now I see his fingers and hardly recognize them as his because they are so thin.  His body is rigid and one leg crosses the other at the ankles. Many days he has tremors that are uncontrollable, but some days he doesn't.  He raises his arms and hands as though he is batting something away. When he recognizes me and smiles, he reaches toward me to touch my face. I try to lean closer, so he can touch me, but I have to move with caution because he has little control over his movements and may hit me in the chin.  His day nurse tells me to bob and weave!  Billy has been eating pretty well for the most part, but the last few times I've fed him, he lost interest before finishing.  I don't think he can see what he is eating which is a blessing because certain foods look really nasty when they are pureed.   He never liked spinach, and I see no need to try to make him eat it now.  

I struggle to find the positive in Billy's condition right now. This disease is evil and takes a person little by little until a rigid shell is left. I am thankful that his smile is still there when he recognizes us. His love is conveyed through his eyes when he smiles, and when I feel really sad about the whole mess, it gets me through.  

On the homefront, Mom is doing remarkably well for a person who was very near death on more than one occasion in the last several months.  What a blessing it's been for her to feel well enough to get out of bed each day.  She even went with me to Sonic yesterday for her beloved limeade.  She was wiped out when we got home, but she got out of the house for a bit at least.  I am thankful for every day I have with her and every week I get to watch Downton Abbey with her. It's the little things that feel like huge blessings from God.

A friend recently reminded me of this beautiful promise from God. 
"Behold, I am making all things new."  Revelation 21:5


6 comments:

  1. His Love shines through you, Kathy!

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  2. For those people who's relative are Alzheimer’s Disease sufferer and maybe reading this, I find it hard that people are still ignorant of herbal medicine when it comes to treating Alzheimer’s Disease.
    I have been through many phases over the last couple of years since my father's diagnosis, he was 53 years old and had Early Onset Alzheimer’s Disease and his diagnosis changed my life in many ways, I spend most of the time in denial and I keep thinking the tests were wrong. But deep down I knew they were correct. Though sharing his story is very difficult. He was always very successful in being able to accomplish anything he set his mind on doing. Alzheimer’s is a bitch of a disease. It began by robbing his recent memory, but it didn't stop there. It continues to steal, taking the most recent memories until it has pilfered all but the oldest memories, he experienced a decline in his ability to think, remember and make decisions. I feel a need to express my thoughts and feelings about how it affected his day to day living and how its deteriorated since despite the help of some wonderful medics and medicine.
    I remind myself how lucky to come across Charanjit rychtova's herbal medicine which is able to control this disease without any side effect, I felt a moment of relief hoping that he is free from this ailment, and nothing compares to the healing power of nature. Now I believe almost every health problem can be addressed in one natural way or another. The only thing I wanted was for him to feel better. I’m proud to say my Dad is Alzheimer’s free. You can also contact him for more info. at charantova@gmail.com

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  3. This is a great write up, I was also a victim, having Alzheimer's disease for many years. My journey and diagnosis with Alzheimer's disease began when I was 58 years old. My medical condition was heart broken. The first thing I did was get myself informed. I was subjected to different medications including Donepezil, galantamine, by my doctors for treatment without the assurance of having a positive improvement. Despite my visit to several doctors my health wasn't getting better. Also I keep thinking there has to be another alternative to address this, using herbal remedy, this information reinforced my original gut feelings that I should not give up. I decided to look for another option to help my condition. I’ve made many lifelong friends when I was looking for a natural cure for my ailment. To say it gets better is an understatement. I find hope in the darkest of days when I saw a testimony of people talking about Dr. Charanjit's herbal product. I started having series of thoughts, thereafter I ordered his product and started using it, to give the Alzheimer's disease an aggressive approach, the symptoms progressively got better.
    Luckily, everything seemed to be okay after a few weeks of starting the herbs, this was a pleasant surprise. I promised myself that I would stay strong. You sit living in fear of the reality what you may face, never really knowing what will happen until it does. I am indebted and decided to always share my experience.
    If you have same problem and ready to give a try check out his blog: https://curetoalzheimer.blogspot.com/ or contact him through charantova@gmail.com.

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  4. Having Dementia disease knocked my grandma off her life and had her living like a mad person, I did know how the better part of her life eluded her, my mind was completely splatted in two, She showed a severe decline in her mental and cognitive skills in the last few years of her life and her quality of life had deteriorated greatly in the last 3 years of life where she was mostly bedridden. I am very glad my partner sought help and now she is free from all signs of psychosis. She was healed through the herbal medicines from Dr Charanjit, I do not wish to go the same route and I manage to live a fairly active and healthy lifestyle.
    Here are her words "Finally, can you imagine what it would feel like to be NORMAL again, like I were before I was struck down by this horrible condition that you never asked for, and don’t deserve?" Sounds great doesn't it?
    You can contact him via email charantova@gmail.com He is well known for his groundbreaking treatments concerning the brain and mind issues.

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  5. In my own case it was just over four years ago when my Mum began to sound different on the phone. She lived back East with my siblings and my husband and I were living on the West coast and in phone calls it became apparent that my Mum's voice no longer had the same tones of excitement and humor that she used to; and instead it was very flat. At the same time she began to tell us about a situation at work that just didn't seem possible; she was complaining that a group of fellow workers were conspiring to get her. Although Mum had much academic success as a teenager, her behavior had become increasingly odd during the past years. She quit seeing her friends and no longer seemed to care about her appearance or social pursuits. She began wearing the same clothes each day and seldom bathed. She lived with several family members but rarely spoke to any of us. Obviously this whole story seemed very unbelievable and we sensed something was wrong but had no clue as to what it could be. We recommended that my Mum quit her job and look for something else - as we began to wonder if she had a "mental breakdown" and would get better once out of the stressful job situation.
    In the case of Mum, she was having persecurtory delusions, auditory hallucinations and negative symptoms that had lasted for at least Three years. All of these symptoms fit with a diagnosis of Dementia. Her story reflects a common case, in which a high-functioning young adult goes through a major decline in day-to-day skills. Although family and friends may feel this is a loss of the person they knew, the illness can be treated and a good outcome is possible as it all got better when we started using a herbal medicine for her through Aparajita.
    My recommendation to people who are either wondering if they have DEmentia or wondering if a friend or loved one has Dementia should contact aparajitatan@gmail.com. I think one of our key problems was that we didn't do this in the early days of my Mum's illness as we never thought of a natural alternative for her.

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  6. As a sign of gratitude for how my son was saved from dementia , i decided to reach out to those still suffering from this.
    My son suffered dementia and it was really tough and heartbreaking for me because he was my all and the symptoms were terrible, we tried various therapies prescribed by our neurologist but none could cure him. I searched for a cure and i saw a testimony of so many people who was cured from dementia and so many other with similar body problem, and they left the contact of the doctor who had the herbal cure to dementia . I never imagined dementia has a cure not until i contacted him and he assured me my son will be fine. I got the herbal medication he recommended and my son used it and in one months he was fully okay even up till this moment he is so full of life. dementia has a cure and it is a herbal cure contact the doctor for more info on drwilliams098675@gmail.com on how to get the medication. Thanks for reading my testimony

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